Pancreatic cancer
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Caregiver Resources
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Caregiver FAQ and glossary

Caregivers face many questions, from daily responsibilities to complex medical terms. Quick answers and a glossary, so you can feel confident navigating the journey.

Caregiver FAQ and glossary

How do I know when to ask for help?

If you are feeling physically exhausted, emotionally overwhelmed, or unable to manage daily responsibilities, it is time to reach out. Ask friends or family to cover tasks, or explore respite care through hospice or home health services.

What should I bring to medical appointments?

A notebook, medication list, insurance information and prepared questions. Having a caregiver present helps patients remember details and feel supported.

How do I talk to children about pancreatic cancer?

Be honest but age-appropriate. Use clear language, encourage questions, and reassure them that their feelings are normal.

What if I feel guilty taking breaks?

Rest is necessary. Taking care of yourself allows you to provide better care for your loved one. Self-care is not selfish — it is essential.

Where can I find financial assistance?

Ask your hospital’s financial counselor, or explore national programs.

Source
Patient Advocate Foundation
Source
Cancer Financial Assistance Coalition

How do I connect with other caregivers?

Join Sky Foundation’s caregiver committees, or online platforms built for exactly this.

Source
Cancer Support Community
Source
CaringBridge

Glossary of key terms

Advance directive. A legal document outlining a patient’s healthcare wishes if they cannot speak for themselves.
Care coordination. The organization of medical care across providers and facilities.
Clinical trial. A research study that tests new treatments for safety and effectiveness.
Hospice care. Comfort-focused care for patients with a life expectancy of six months or less.
Palliative care. Care designed to relieve symptoms and improve quality of life, provided at any stage of illness.
Respite care. Temporary relief for caregivers through short-term professional support.
Survivorship. The phase of care that begins after active treatment ends.

Key takeaway

Caregiving is filled with questions, and no one should feel lost or alone. Learning common terms, asking for help and connecting with supportive communities all make you a stronger advocate for your loved one.

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